What is Vaginal Agenesis?
Vaginal Agenesis (a-JEN-uh-sis) is a rare disorder that occurs when the vagina doesn't develop, and the womb (uterus) may only develop partially or not at all. This condition is present before birth, and may also be associated with kidney, heart or skeletal abnormalities.
The condition is also known as mullerian aplasia or Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome. Both surgical and nonsurgical treatments are available.
After treatment, you may be able to have a normal sex life. Women with a missing or partially missing uterus can't get pregnant. If you have healthy ovaries, however, it may be possible to have a baby through in vitro fertilization using a gestational carrier.
The use of vaginal dilators should only be started after you have a complete exam, after your gynecologist makes the diagnosis of vaginal agenesis, and when you understand all of your options and have time to make a decision that’s right for you. Your gynecologist should review the following instructions with you. Monthly follow-up with your gynecologist is recommended while you are dilating.